Brashinger: New Lenox couple shares child’s autism story in new book
By Ginger Brashinger Citizen Journalistfirstname.lastname@example.org January 24, 2013 10:54AM
Lisa Goes sits in her New Lenox home in front of the “Rare Wall,” a collection of photos of children who have been adversely affected by vaccines. | Supplied Photo
Updated: February 28, 2013 6:16AM
Lisa Goes, 42, of New Lenox, is a warrior in a revolution — the Thinking Moms’ Revolution.
Lisa is part of an activist group of 24 like-minded parents of children with autism which began about a year ago and already has had nearly 300,000 visitors worldwide to its website.
The women’s determination to promote understanding of their children and to find the cause of autism has struck a nerve worldwide.
“I don’t understand how we can treat (autism) if we don’t know what causes it,” Goes said.
To that end, the group is working toward governmental and medical acknowledgement that childhood immunizations do cause autism and other auto-immune diseases in some children, a validation that could lead to preventive measures and treatment, Goes said.
It’s just common sense to the Goes family, which also includes Lisa’s husband, Dave, and their children, Madeleine, 8, Noah, 6, and Liam, 4. Lisa and Dave said Noah is one of the many innocent children harmed by routine vaccinations, and they will not rest until he can be “recovered” in every way.
“Noah would not have been vaccinated if he had been tested first,” Lisa said, adding she now knows what the medical community should have known: that Noah’s life would have been different had he been given pre-immunization tests.
Lisa said because of Noah’s sensitivities and family traits, some of the vaccines he was given might have been eliminated, and others might have been rescheduled. Instead, Noah is a child diagnosed with iatrogenic autism, mitochondrial disease and autistic colitis, which simply means he is in constant movement and constant pain.
The Goeses said Noah’s medical problems began when he had a negative reaction to a routine hepatitis B vaccine given at birth. At the time, they didn’t connect the injection and Noah being a “late developer” the first year of life. Instead, they thought he was “an incredibly compliant baby.”
But, Lisa said, Noah became a “strikingly different child after his 12-month immunizations.”
“The gains we did see disappeared,” she said.
Lisa said Noah was given nine vaccines in five injections at his 12-month check-up, after which he became extremely lethargic and ran a high fever.
Medical personnel at the clinic told them Noah was having a normal reaction to the vaccinations.
“He was never the same after that,” Lisa said.
Lisa said Noah’s communication is limited; he is a “head banger;” perseverates on things he wants and will flee the house or car if given the chance, requiring special locks and car seats.
The whole family is affected. The Goeses said they are “split” because Noah can’t always attend his siblings’ functions.
A quick trip to the grocery store — routine for most people — requires strategy and scheduling for the Goes family.
Perhaps saddest of all is that family get-togethers, rather than giving Noah joy, may cause him anxiety and regression.
There are additional expenses, too.
Noah requires a round-the-clock caregiver, in addition to the care he receives from family members.
Noah attends a private school, the Academy for Excellence in Learning in Mokena, a nonpublic special-education agency which the Goeses credit for helping Noah and for helping the whole family to understand and assist him.
Dave’s parents live “down the block” in New Lenox, the community in which he grew up. They are a constant source of help, he said.
Lisa’s parents will leave their home out of state to move in with the Goes family in order to help, too.
Although it is difficult for Lisa to talk about, it is important for her to share Noah’s story and those of other children and families who have suffered a similar fate. A book of true stories compiled by Goes and Helen Conroy, “The Thinking Moms’ Revolution: Autism Beyond the Spectrum,” is scheduled for publication in April.
Group members hope the book will bring even more attention to their cause and put additional pressure on the medical community and government to accept research that points a finger at some vaccines as one cause of autism and autoimmune diseases. As a family, the Goeses sincerely want to help others understand.
“The thing that is really frustrating is, we are constantly painted as if we’re crazy, that we’re anti-vaccine,” Dave said. “But we were hook, line and sinker with the whole vaccine program (before Noah’s reaction).”
Although they cannot go back in time and change what happened, they believe they can help others look forward.
“If we had just read the package inserts and the doctors had read package inserts on vaccines, I highly doubt we’d be giving (vaccines) to the general population,” Lisa said. “We took a healthy baby who came into this world well, and we made him sick.”
For more information, visit www.thinkingmomsrevolution.com.